10 users responded in this post

Subscribe to this post comment rss or trackback url
User Gravatar
Heraldblog said in April 23rd, 2007 at 12:23 pm

Bravo, that needed to be said. I am the father of an 11-yr-old with autism. Thanks so much for the very well reasoned piece. Not bad for a retired stripper! ;-)

User Gravatar
MET said in April 23rd, 2007 at 12:32 pm

As the *normal* older sister of a 52-year-old autistic woman who requires and who has always required 24/7 care, despite her verbality, whose amorality and lack of empathy approach that of a 2-year-old on a good day, whose disability was and is a familial catastrophe, I can only say that this is a load of politically correct garbage. And I don’t care if I’m called genocidal, or bigoted, or intolerant; what I am is honest, and I won’t “tolerate” disrespect and belittlement of my family’s long nightmare. After all, I’ve had a lot more experience with autism than most – half a century’s worth.

User Gravatar
christschool said in April 23rd, 2007 at 5:54 pm

Margaret, I really enjoyed your article. I would like to read it in a video on Youtube, giving you full credit. I think it is quite powerful. Of course, I respect your wishes either way. Please use my email address to respond.

User Gravatar
Do'C said in April 23rd, 2007 at 10:19 pm

An excellent article Margaret. I really liked that fact that it is quite thorough, yet an easy read.

User Gravatar
Phil Schwarz said in April 24th, 2007 at 8:37 pm

I commented where the article was published, over on blogcritics.org, but it’s worth reiterating praise where praise is due. D o’C put his finger on what makes your essay so effective. And I’d *love* to see what Christschool could do with the text!

MET, I think it’s an unfortunate mistake to assume that proponents of neurodiversity acceptance belittle or disrespect your family’s — and your sister’s — struggle. We don’t.

Margaret, if you do take up the topic idea I commented on over at blogcritics.org, I think you’d do an excellent job of it. Don’t worry about not having thought of the idea first :-) — go for it! And let me know if you do: I think the urgency of getting autism organizations and their rank-and-file to focus on the *constructive* things they can do to improve the daily quality of life of autistic people and their families is so important that I’d like to see if we could run it in the newsletters and on the websites of the autism organizations I’m active with, Autism Network International (http://www.ani.ac), the Autism National Committee (http://www.autcom.org), the Asperger’s Association of New England (http://www.aane.org), and (yes, even — perhaps especially) the Massachusetts chapter of the Autism Society of America.

User Gravatar
Margaret Romao Toigo said in April 24th, 2007 at 8:54 pm

Thank you all for stopping by, your kind words mean more to me than I can express.

MET, I am sorry that you feel that way. I imagine that there weren’t very many good exceptional educational programs for autistic children back in the 1960s, which is unfortunate. One of the goals of neurodiversity advocates is to work toward improved education that so that today’s autistic children may have more opportunities to reach their full potential.

Phil, I’m sorry about the delay in posting your comment, but my software places comments in moderation if they contain more than one link — spam prevention protocol.

User Gravatar
Amy said in April 24th, 2007 at 8:56 pm

Thank you for this. I’m not sure of your connection to the Autism community, but you put in words what many of us have been trying to say.

The politics are dividing and essentially conquering our efforts to learn and understand.

Autism is the new Homosexuality when it comes to understanding.

User Gravatar
Margaret Romao Toigo said in April 24th, 2007 at 10:50 pm

Amy, the observation that “autism is the new homosexuality” is very interesting to me because I have also advocated for gay rights (specifically the recognition of same-sex marriage) and I have noted numerous commonalities in the debating points of those issues.

Of course, homosexuality is not a disability and the Bible doesn’t refer to autism as an “abomination” (Leviticus 18:22), but none of that should matter with regard to HUMAN rights.

My connection is that I am a neurotypical mother of four children; two neurotypical, one autistic, and the youngest is very likely going to be diagnosed with Asperger’s when she is evaluated by the developmental pediatrician next month.

User Gravatar
MsMissyLink said in May 17th, 2007 at 9:31 pm

“Only when the many shapes of personhood are recognised will justice and human rights be possible.” – A.M. Baggs -In My Language
Margaret you wrote an amazing commentary. It certainly stirs up people.
I had a drama teacher tell me once that most people are motivated by one of two things. I think that it pertains here in the struggle to understand the politics of autism. The two things that motivate people are love and fear. Most of what drives us is fear. Fear of God, fear of retribution, fear of our parents, fear of the unknown, there are a lot of things in the world to be afraid of. Lust and greed fall under fear. So does hate and loathing. Maybe some of our actions are motivated by both love and fear. I’m sure parents that lash out at your blog love their children too. I think that what’s important to remember about a political movement of people(even if we are in total disagreement with each other) whose mission is to change something, is: That IT needs changing. You got to have both extremes sides to balance out and come to a middle understanding on a command ground. I believe that a someday a change is going to come. The world is going to accept nuero- diversity. At least blogs like yours and video’s like Christchurches are creating controversey and dialog, which is a step in the direction of a new way. Keep on shaking things up Lady.

User Gravatar
Independent Politics said in October 9th, 2011 at 1:55 pm

Independent Politics Great post – thanks for the info…

Great post – thanks for the info…

Leave A Reply

 Username (Required)

 Email Address (Remains Private)

 Website (Optional)

Rss Feed Tweeter button Facebook button Technorati button Reddit button Myspace button Linkedin button Webonews button Delicious button Digg button Flickr button Stumbleupon button Newsvine button Youtube button